Hey Ramblers…I know this is my book blog…but I just wanted to share a bit of a health update. To hopefully help you get to know me a bit more.
Currently I’m having a few dramas. You see my body is resisting current treatment…who knew my body was just as stubborn as my personality lol 🤷🏻♀️….because of this, I have to add a second immunosuppressant along with my other one. The doctor says I’m getting progressively worse since he’s seen me in January (not great news). But it was nice to be validated on that because I’ve really felt that way for quite some time. Like my body is just shutting down. Not really fighting.
So my body apparently is overly sensitive to the chemo med so my doctor doesn’t want to increase the dose, as I’m already having a tonne of bad side affects…hair loss, gut issues, bruising, fainting, loss of appetite for both food and drink, severe energy depletion…just to name a few. So I’ll be switching to an injection version of that same med…as he hopes that by going straight into the bloodstream it should avoid the nausea etc…not looking forward to jabbing myself. I’m too clumsy to be given a task like this lol. But I’m willing to give it a go. It’s a struggle to keep going like this. I’m over being in constant pain and fighting internal battles of the mind and body.
My doctor is really trying to find a solution which I really appreciate. As a lot of doctors have just ridden me off as too complicated or a mystery…he knows for sure that I have an autoimmune disease but he’s struggling to pinpoint it… Zamma and I decided we are just going to call it the Peanut (my nickname) disease lol 😂 ….anyway, he’s treating it to the one illness that I have the most similar symptoms to. Seronegative Arthritis. The problem is that this illness also is stubborn and hard to treat in itself. But because I’m increasingly getting worse, he wants to try different avenues. There’s so much going on in my body I think it baffles him…there’s just so many unexplainable things that are happening that just don’t have answers. Such as my weird blistery swollen hands. No clue what that is. But you don’t want them. It’s painful 😣.
Moving on…so there’s this new med that’s come out in Australia. It’s a Biochemical med and is a LOT stronger. Like for eg if I get a cold or infection I will need to stop it right away until I’m better….This is the route he is considering but the only way I can get it at a more affordable rate, is to have tried all other options. So we doing that at the moment now. So by next Monday I’ll be jabbing myself and in a month I’ll start my next immunosuppressant and see how that goes. In between all this, I’ll be having multiple blood tests coz well, it’s also going to be attacking my white blood cells and also my liver. Worse case lungs. But I’m just going to take it one day at a time. I’m more worried about the side affects to be honest. They have some bad ones and some really odd ones like say…orange sweat lol. Like what?! I’ve seen a lot of side affects for meds… but never coloured sweat 😂 my sister thinks I’m gonna look like an Oompa Loompa (the first of my kind since I’m the tall version haha)…and in my head I have a picture of me in summer and being all like sweaty and looking like I have a really bad fake tan 😂😂🙈
Anywho, probably going to be a bit rough on me. But since my body is being stubborn and resisting…new meds are needed. I have a picture of my little cells running around being all like “look at us go. Aren’t we doing great? We fighting the intruder off.” Thanks cells…fight the meds but ignore the fact my body is like going haywire.
So be prepared…it said it could make me more confused and out of it, soooo…. it’s not my fault if I don’t make sense lol.
So not a lot is going on in my life at the moment. I’ve been in bed a lot but I do my best to sit in the sun coz no one wants to be cooped up all the time. Unfortunately, there’s not a lot I can do but I can read a bit so that’s a win in my books hehe. What are you all been up to? What are you reading?
Hope u are all well and doing okay. Much love to u all Ramblers. 😘💜