In The Life Of The Chronically Sick…

Hey, my beautiful Rambles! It’s been an age since I’ve made a post, which I do apologise for but the COVID caught me about 6 weeks ago and it has been rough going, to say the least. I can’t believe I made it 2 years without catching it, to be honest…but it hit and stubbornly refused to let my body get off that easily. Even now I’m still showing symptoms of having it and the rest of my body just decided to go into hectic flare mode…so it has been an interesting time.

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In The Life Of The Chronically Sick…

Hey my beautiful ramblers! Dude, I seriously hadn’t been expecting to do another of these posts this week. Especially not one the following day lol. But something came up, that I have thought long and hard about sharing because I know topics like this one, can be a whole can of worms scenario lol. But after thinking on it, I truly felt it could help you see a little more into those of us that are chronically sick…and that sometimes we can’t just do things because it is required…and sometimes, definitely, not without first checking in with our doctors. So I wanted to speak for a couple of people, who I know, that have had either comments or judgement made on them about vaccinations.

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In The Life Of The Chronically Sick…

Hey my beautiful ramblers! I’m back with another in the life of post…this one isn’t going to be that long…but today has been an exhausting day. Have I done anything to tire myself? Nope, my body just does that all on its ownsome, for no reason. Between dizzy spells, pain on more higher level, fatigue thats mostly kept me in bed for the day and just generally feeling off. It has just truly left me spent, mentally and physically…I did have the fun time of getting jabbed three times, though, today. Once for my recurring blood test and twice for my monthly injection for my Spondyloarthritis treatment. Nobody loves a needle and especially not three in the span of 15 minutes lol. Okay, I admit, you do sorta get used to it to a point, but if I never saw a needle again I’d be totally fine by that.

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In The Life Of The Chronically Sick…

Hey my beautiful ramblers! I’m back with another in the life of the chronically sick post again. Let me know in the comments if you like these sort of posts, and whether I should keep doing them. 🙂

I just wanted to pop on quickly, to share a little about what life can sometimes look like for us…and the randomness that can be thrown at us. Like take me right now for example…

I’m currently feeling super weird right now, like I’ve drugged myself, without actually taking anything. Gotto say that’s a lame super power lol. But man, my head is both light and heavy at the same time. Like my face wants to do it’s own version of a landslide, whilst another part of my head feels floaty like air is just swishing around in my head. I’m gonna take a wild stab and say it’s to do with exhaustion..please, don’t ever take showers for granted guys, they literally ruin me every time!…Ugh, regardless, I really don’t wanna feel drugged, I hate that feeling so much. It’s why I try to stay away from opioids, even if they can help with pain, my body just does not react well with them, at all…so it kinda defeats the purpose in the end. So like any sane woman I’m eating chocolate wishing away my problems. What are you currently doing wherever you are?

Seeya next time 😊💖

In The Life Of The Chronically Sick…

Hey my beautiful ramblers! I know I’ve been terrible of late and haven’t been around much, keeping things active. Life has been really stressful. Between family things and health, life has felt very up in the air and totally out of my control; Which my OCD ways are struggling with. We are also in our 8th week of lockdown, which is kinda what I wanted to talk about…coz it’s got me thinking, that maybe I can help shed a bit of light on the life of the chronically sick.

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In The Life Of The Chronically Sick…

So you guys may have noticed that I’ve been MIA for a couple of weeks now. Or maybe you totally didn’t lol. Either way, I’m finally making my presence once again back on the social platforms, I bet you totally missed me, not 😂. Nothing exciting happened in my absence…instead, over the last few weeks I actually got quite sick and run down and I’m only just now starting to feel a bit more human again. Still mostly in bed due to extreme fatigue levels but I don’t feel half dead at least, so that’s a win right?

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In The Life Of The Chronically Sick…

So I thought I might start writing some random posts about my life and share in the journey of my health. As a lot of you would know, I’ve had a lot of health issues over the time and more recently was diagnosed with Spondyloarthritis an autoimmune inflammatory disease. What can I say? I love to keep my mum on her toes…since I was a little kid I was the one who got the weird sicknesses, like say Scarlet Fever and Kawasaki disease along with Infantile Asthma and burst ear drums…now it seems my bodies goal is to collect as many chronic illnesses as it can lol. The list is ever growing 😅🤷🏻‍♀️

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Beautiful Birthday Gift!

Loooook guys!!! My mum just gave me the perfect birthday present, it got delayed because it was being custom made! But oh my sweet little heart…it’s just PERFECT!! Now I can have a piece of my Onyx dragon with me always.

Anyone who doesn’t remember the moment Zamma and her Oupa took it into their hands of making me my own little dragon that helps me fight my chronic illnesses (you can read the full story here if you want). Anywho, that’s how Onyx came about. This name was chosen very specifically. You see, the onyx stone is a powerful protection stone, which can absorb and transform negative energy…whilst also helping to prevent the drain of ones energy and aids with emotional and physical strength and stamina – especially during times of stress and confusion….so it was just very fitting name for one dragon who is basically doing all that.

But my mum knew how much I wanted, actually no, needed this onyx stone earring and she made it happen. Knowing how much it means to me. This woman is truly the most incredible and loving of people and my heart is so touched that this amazing person is my mum. Love you always and forever.

Fibromyalgia Awareness Day

Many might not know but the 12th of May is awareness for Fibromyalgia. An invisible illness that not many can easily see directly. Which does make it hard for those suffering from the chronic illness. This illness is just one of the chronic illnesses that has definitely flipped my life around majorly. It causes severe fatigue and widespread pain. Among a lot of other symptoms that’d take me quite some time to explain. But basically it attacks every system in your body and there is no fix or cure for this. Doctors are only just now starting to even recognise this as an illness, which is a great start. But sometimes we just need the people around us to understand a little of what we go through each day. Here is a small glimpse in a life struggling with Fibromyalgia and other invisible illnesses I have.

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Thoughts Of A Rambling Person

Hi guys. 🙂 You may have noticed that I recently popped up a “donation” button on my site…and I just wanted to explain a bit about that. So I’m sure a lot of you are aware by now, that I do suffer with multiple chronic illnesses (Fibromyalgia, Chronic Fatigue Syndrome, Costochondritis, Osteoarthritis, Inappropriate Sinus Tachycardia (IST) and the list continues)…I’ve also recently been diagnosed with an undiagnosed autoimmune disease, yeah that sucks, believe me, it’s awesome being a human guinea pig…it’s seriously one of the worst feelings, being told you have an autoimmune disease but they can’t pinpoint exactly what it is…because all my symptoms are so vast…but hey, maybe it’s not even an illness they’ve come across before…I’m going true Tassi fashion… and they can just name the disease after me lol 🙄…Because of this, I’ve recently found a strong appreciation for the ARRC – Autoimmune Research and Resource Centre. It’s all about helping individuals live a life and not the illness. It’s a non-profit organisation, that purely runs off what the community donates…which is seriously so touching. You don’t always truly appreciate foundations like this, until you are in that very boat. But even so, it’s hard finding your place in a community like this, without actually having a titled diagnosis.

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Life Update

So, apparently people like life updates…is that a thing? Should I be doing that? Let me know in the comments if you want more about me. I’m terrible talking about me. Like what’s to tell? I have no clue lol. But from time to time I could try and give an update….if that’s what my Ramblers want.

Books I’m Reading

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Life Update

Hi, hi guys! I just wanted to give a little bit of an update. So last Thursday I was given a new diagnosis of Spondyloarthritis – I don’t know if many of you would’ve heard of it but it’s all basically connected to the inflammation in the body but originates from the spine – it is an autoimmune disease…and when left untreated it just spreads attacking your whole body. Mine was left untreated for 8 years so you can kinda guess severity levels yeah.

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Meandering Monday

Sorry I haven’t been posting too much of late, health just hasn’t been on my side. But I will have a few more reviews coming soon, since I’m currently reading two ARC books at the moment. Then after that I think I will have a few other books heading my way, mid to late January or early February, depending on authors plans 🙂

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